Alzheimer’s Resources

NATIONAL (UNITED STATES)

 

AARP

Website: http://www.aarp.org/health/brain-health/info-2015/alzheimers-research.html

AARP is doing amazing things to make life better for today’s 50-plus population and generations that follow. In the face of constantly changing realities, AARP is a champion for social change. We help people navigate ageless realities — financial well-being, health, how to contribute to society and local communities, and how to fully enjoy life.

Alzheimer’s Association

Website: http://www.alz.org/nyc/

The Alzheimer’s Association works on a global, national and local level to enhance care and support for all those affected by Alzheimer’s and other dementias. The Alzheimer’s Association also has local chapters across the country.

Alzheimer’s Drug Discovery Foundation

Website: http://www.alzdiscovery.org/

The ADDF focuses on translating the knowledge it has gained about the causes of Alzheimer’s disease into drugs to conquer it. ADDF supports an underfunded area—preclinical drug discovery and early-stage clinical trials of potential drug targets. By bridging this critical gap in funding, the ADDF enables leading scientists to pursue pioneering research projects that would otherwise go unexplored.

Alzheimer’s Foundation of America (AFA)

Website: http://www.alzfdn.org/AboutUs/missionstatement.html

AFA unites more than 2,400 member organizations from coast-to-coast that are dedicated to meeting the educational, social, emotional and practical needs of individuals with Alzheimer’s disease and related illnesses, and their caregivers and families. Under AFA’s umbrella, these organizations collaborate on education, resources, best practices and advocacy —all resulting in better care for people affected by the disease.

Alzheimer’s Poetry Project (APP)

Website: http://www.alzpoetry.com/

APP improves the quality of life of people living with Alzheimer’s disease and related dementias by facilitating creative expression through poetry. APP provides online trainings to family caregivers, healthcare workers and artists on how to use poetry to connect with people living Alzheimer’s disease and related dementias; runs the Poetry for Life (PFL) project, in which students create and perform poems with elders; and along with the New York Memory Center, co-produces the Memory Arts Cafe, a series of free art events for people living with Alzheimer’s disease, their caregivers and the general public.  

BrightFocus Foundation

Website: http://www.brightfocus.org/

BrightFocus supports research programs to help eradicate brain and eye diseases, including Alzheimer’s disease, macular degeneration, and glaucoma.

Caregiver Space

Website: http://thecaregiverspace.org/

The Caregiver Space is an online community that provides a safe and open space where “you can be real about what it’s like to care for someone dealing with a serious disability or illness.” The site provides forums in which you can ask questions, share experiences or just vent. The Caregiver Space also provides resources and articles related to caregiving.

Dementia Society of America

Website: http://www.dementiasociety.org/

Dementia Society of America presents resources and programs to enhance the quality of life for those living with dementia, caregivers, and the community.

Fisher Center for Alzheimer’s Research Foundation

Website: https://www.alzinfo.org/

The Fisher Center is one of the largest and most modern scientific facilities in the world dedicated to solving the puzzle of Alzheimer’s disease. The Fisher Center states that its mission is “to attack the scourge of Alzheimer’s disease through a 3-pronged assault focused on understanding the causes of Alzheimer’s disease; improving the care of people living with Alzheimer’s to enhance their quality of life; and finding a cure for this devastating disease.”

 

NEW YORK 

 

CaringKind

Website: http://www.caringkindnyc.org/

With over 30 years of experience, CaringKind works directly with its community partners to develop information, tools and training to support individuals and families affected by Alzheimer’s and dementia.

New York Memory Center

Website: http://nymemorycenter.org

New York Memory Center provides services to adults with cognitive, physical, and emotional limitations to help them enjoy life beyond a diagnosis of memory loss. New York Memory Center operates two programs for those with memory loss: the Lotus Club, an early intervention and support program for those experiencing the earliest stages of Alzheimer’s and related dementias, and Memory Life Services, a program that provides more extensive services suitable for adults in the community with middle to later stage memory loss.

New York City Department for the Aging: Alzheimer’s and Caregiver Resource Center

Website: http://www.nyc.gov/html/dfta/html/caregiver/alzheimer.shtml

The Alzheimer’s and Caregiver Resource Center of the New York City Department for the Aging is staffed with experts in dementia and long-term care issues. These professionals understand the challenges involved in caring for someone who has Alzheimer’s or is frail or chronically ill. They can help you develop a plan of care to keep your loved one at home as long as possible and assist you in planning for future care. They can also link you to resources in your neighborhood that can make your job easier.

New York State Office for the Aging

Website: http://www.aging.ny.gov/

The New York State Office for the Aging’s (NYSOFA’s) home and community-based programs provide older persons access to a well-planned, coordinated package of in-home and other supportive services designed to support and supplement informal care. The NYSOFA’s overall goal is to improve access to, and availability of, appropriate and cost-effective non-medical support services for older individuals to maximize their ability to age in their community and avoid higher levels of care and publicly financed care. NYSOFA achieves this through our network of 59 local Offices for the Aging.

 

 

CANADA

 

The Purple Elephant

Website: https://thepurpleelephant.org/

Purple Elephant is a nonprofit organization whose mission is to change the way young people think about Alzheimer’s disease, and to empower young people and inspire communities to be agents of change. Purple Elephant also works to provide in-home caregiving relief to individuals and families whose lives have been impacted while caring for a loved one with Alzheimer’s. Its members, “The Purple Tribe” are active in the community, standing in unity as Purple Elephant raises awareness about Alzheimer’s disease.

 

THE UNITED KINGDOM

Alzheimer’s Society

Website: https://www.alzheimers.org.uk/

Alzheimer’s Society is a dementia support and research charity for those affected by any form of dementia in England, Wales and Northern Ireland. Alzheimer’s Society provides information and practical and emotional support to help people live well with dementia, and it invests in world-class research with the ultimate goal of defeating it. Alzheimer’s Society also campaigns to improve public understanding of dementia and the devastating impact it can have.

 

MAGAZINES & JOURNALS

 

Alzheimer’s & Dementia: The journal of the Alzheimer’s Association

Website: http://www.alzheimersanddementia.com/

Living With Dementia Magazine: the magazine of Alzheimer’s Society

Website: https://www.alzheimers.org.uk/magazine

The Alzheimer’s Weekly

Website: http://www.alzheimersweekly.com/

Preserving Your Memory Magazine: the magazine of the Fisher Center for Alzheimer’s Research Foundation

Website: https://www.alzinfo.org/news/preserving-your-memory-magazine/

Discover Magazine

Website: http://discovermagazine.com/tags/alzheimers-disease

Discover magazine reports captivating developments in science, medicine, technology, and the world around us.